A global quest for “missing children” begins in earnest today.
Only 54 children with Progeria, a rare disease that causes premature aging in children, are known to researchers and patient advocates. However, experts estimate that another 150 unidentified children with Progeria live throughout the world.
GLOBALHealthPR partners have pooled our resources in an international campaign to promote awareness and dialog to help locate these children. Each child who is brought forth could benefit from the medical services and unique care that The Progeria Research Foundation (PRF), our pro bono client, can provide.
“Our goal is to find these children as quickly as possible so we can educate their families and health-care providers on the latest in Progeria research and treatments. We are excited to launch this campaign with GlobalHealthPR because their global reach will help us spread awareness to a worldwide audience,” said Audrey Gordon, President and Executive Director of PRF.
Progeria is personal for Gordon and her sister, who is PRF Medical Director Dr. Leslie Gordon. Dr. Gordon’s son was diagnosed with Progeria more than 10 years ago and the family is dedicated to finding a treatment and cure.
If you have contacts or friends overseas, or if someone you know or treat has Progeria-like characteristics, please contact The Progeria Research Foundation at www.findtheother150.org for resources that will help to provide them the best treatment possible.